Er et liv med Downs syndrom et liv med lidelse?

Research output: Contribution to journalJournal articleResearch

In 2004, Denmark became one of the first countries in the world to extend free prenatal screening for Down syndrome to all pregnant women, regardless of age. The new guidelines were intended to shift from a “paradigm of prevention” of disabled births toward an era of autonomous, informed decision-making for pregnant women. Today, public discourse in Denmark suggests that a life with Down syndrome entails suffering for those living with the diagnosis and their families – a position rejected by the disability community. Instead, parents of children with Down syndrome describe how difficulties more often arise through frustrating interactions with welfare services and worries about the future rather than life itself with a child with Down’s syndrome.
Translated title of the contributionIs a life with Down syndrome a life of suffering?
Original languageDanish
JournalBibliotek for Laeger
VolumeDecember
Issue number2023
Pages (from-to)370-381
Number of pages12
ISSN0906-5407
Publication statusPublished - 2023

ID: 384431058